tag:blogger.com,1999:blog-8196126621905756568.post2196769989352382772..comments2024-01-27T22:03:27.691-08:00Comments on Sweet Ella Grace: Round 6 Has Begun!!!Denisehttp://www.blogger.com/profile/00587160152394379314noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-8196126621905756568.post-53582063241324945812010-12-05T13:07:30.532-08:002010-12-05T13:07:30.532-08:00I am very late in answering this! I'm currentl...I am very late in answering this! I'm currently sitting in a hotel room in Serbia with my new son! I'm a little behind on my blog reading. ;-) <br /><br />About the gtube, put it under a onesie, then run it down her tummy and her pants so it comes out the leg of her pants. When she's in the high chair she she (hopefully) won't be able to get to it well enough to disconnect it. <br /><br />Also, when she's having her feeds, if she is interested in putting stuff in her mouth, encourage that at the same time she's getting a feed. It is amazing how quickly some kids forget to associate putting stuff in their mouth with getting satisfied. With Angela we gave things that had flavor but I knew she couldn't/wouldn't bite off, like whole raw carrots, or popsicles. I know Ella isn't big on things in her mouth right now because of sores and stuff, but it's worth a shot if she's at all interested. <br /><br />Hopefully the soreness is gone by now. The nerve endings in the skin were cut during surgery, so the stoma itself should not be sore. (just like if you have surgery you now have a numb area at the site of the incision...like a c-section scar) <br /><br />Once she is used to feeds, you can do bolus feeds with a syringe. Some kids can tollerate getting their feed over the course of a few minutes, just like if they guzzled a cup of pediasure. My Angela could get a whole feed pushed in via syringe in about a minute! Every kid is different in how they tolerate feeds though. <br /><br />Hugs, and hang in there!Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-62682936373592236962010-12-03T10:01:02.794-08:002010-12-03T10:01:02.794-08:00Love the diaper pictures! Love all the pictures, ...Love the diaper pictures! Love all the pictures, actually. The first one is great. She's got such a great happy face! Good luck with this next round. I hope it goes much smoother and that you're out by Christmas. Hugs and smooches from Chloe and her family!Mama Mason-Mannhttps://www.blogger.com/profile/06917976774636808205noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-78997331833689598262010-12-02T14:51:30.308-08:002010-12-02T14:51:30.308-08:00Love what Stephanie said... So many fun visits for...Love what Stephanie said... So many fun visits for you! We're praying for you sweet girl!Emilyhttps://www.blogger.com/profile/05573655586853387634noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-54964674267265814522010-12-01T19:45:34.171-08:002010-12-01T19:45:34.171-08:00I thread my son's under his pants...after tapi...I thread my son's under his pants...after taping it of course. :) Hope it works! Blessings!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-75547013251669492722010-12-01T17:05:15.943-08:002010-12-01T17:05:15.943-08:00It was so, so wonderful to meet you all! I can...It was so, so wonderful to meet you all! I can't wait to come back for another visit. <br /><br />I have been thinking of you and Ella and hope all is well with Round 6 so far!Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-82063824357608764082010-11-30T22:31:56.101-08:002010-11-30T22:31:56.101-08:00Awww the girls with the diaper....what a laugh, se...Awww the girls with the diaper....what a laugh, seems like Ella has got the others hooked!!<br /><br />O.k. round 6 here she comes, lets get it over and done with and put this behind us!! Yes Ella you are a fighter and you're going to do just great. Mommy stay strong just like you've done throughout this journey. Sending prayers of healing and much love always.Tinahttps://www.blogger.com/profile/15552691097146215450noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-40796476910090823352010-11-30T20:36:00.180-08:002010-11-30T20:36:00.180-08:00sending love, good luck, prayers to you all this r...sending love, good luck, prayers to you all this round! Love the Pics...gosh she's grown since we saw you guys last...feels just like yesterday, yet the pics remind me it was almost a lifetime ago. Sending hugs and kisses!Michellehttps://www.blogger.com/profile/00178966273762200571noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-2853747926390924462010-11-30T19:57:34.173-08:002010-11-30T19:57:34.173-08:00Even more prayers than usual coming your way. Pra...Even more prayers than usual coming your way. Praying this round goes smoothly and that you are home and enjoying the Christmas holiday with your family. <br />Love the pics of the girls...the Puritan girls one is a hoot! =)<br />Sending something to Miss Ella soon -- just got to get myself organized and to the post office! =)Lorihttps://www.blogger.com/profile/14816187144933886978noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-58549647602241303362010-11-30T19:52:38.282-08:002010-11-30T19:52:38.282-08:00what a great post. i love the pictures. ella reall...what a great post. i love the pictures. ella really looks like she is teaching the other girls about diapers and the puritan photo...adorable! i hope this round is easy and you are home for christmas. lots of love and prayers headed your way.Christi Harrisonhttps://www.blogger.com/profile/09625311140466535277noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-58588397142803784612010-11-30T16:36:03.043-08:002010-11-30T16:36:03.043-08:00Sounds like so much fun!! :)Sounds like so much fun!! :)Kellihttps://www.blogger.com/profile/04758559804272645059noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-70286402447953234082010-11-30T15:22:35.105-08:002010-11-30T15:22:35.105-08:00That is a room full of adorable!That is a room full of adorable!Cammie Heflinhttps://www.blogger.com/profile/07843057037279743749noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-69031119803858193612010-11-30T11:36:02.716-08:002010-11-30T11:36:02.716-08:00Denise, see if you can get some AMT Clamps to try!...Denise, see if you can get some AMT Clamps to try! <br />http://www.appliedmedical.net/amtclamp.htm<br />I will see if I have any lying around the house and let you know. :)ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-75707158066547263532010-11-30T11:04:10.990-08:002010-11-30T11:04:10.990-08:00Oh wow, I had no idea you would be starting round ...Oh wow, I had no idea you would be starting round 6 so quickly, but at this rate, maybe you have a shot at being out by Christmas and totally done with all of this! Ella looks great! I hope this round is uneventful!Runningmamahttps://www.blogger.com/profile/15248750625897632738noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-80046238128080141922010-11-30T09:20:56.993-08:002010-11-30T09:20:56.993-08:00the cutness gauge is off the charts :) I see who ...the cutness gauge is off the charts :) I see who the "teacher" in the group is. oh how she has grown the past several months....baby to big girl too fast. Could you send your address so I can get some christmas cards out in the next few weeks? Hope everything continues to go smoothly {{hugs}}my familyhttps://www.blogger.com/profile/00965034997906612228noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-18501355586875989922010-11-30T09:16:45.711-08:002010-11-30T09:16:45.711-08:00So thankful that she is on round 6! Praying for a...So thankful that she is on round 6! Praying for a speedy round, no illnesses and that you are home for GOOD way before Christmas!!!<br /><br />P.S. Alayna had tonsils, adenoids removed and ear tubes put in. She is doing well.Rochellehttps://www.blogger.com/profile/11866781944242761406noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-71863715421144462982010-11-30T08:09:05.041-08:002010-11-30T08:09:05.041-08:00You have the most upbeat, positive, fun blog! I lo...You have the most upbeat, positive, fun blog! I love coming here and reading about Ella's journey, although cancer is not a journey you would have chosen you find the best in things and cherish what you have.<br />Ella is a true beauty and so sweet you just want to squeeze the stuffing out of her! <br />The three girls together melted my heart today thank you for sharing!<br />You need stock in diapers!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-84369314151628752502010-11-30T07:50:14.966-08:002010-11-30T07:50:14.966-08:00What cuties!!
Praying round 6 goes well and fast!...What cuties!!<br /><br />Praying round 6 goes well and fast! Hugs!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-38096700799001807802010-11-30T05:23:13.981-08:002010-11-30T05:23:13.981-08:00So glad that you were home for the weekend and tha...So glad that you were home for the weekend and that she had some fun with friends:)Rachelhttps://www.blogger.com/profile/16915395779182043474noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-45960605124438185892010-11-30T04:27:49.072-08:002010-11-30T04:27:49.072-08:00AWW, you meet so many bloggy friends! What a great...AWW, you meet so many bloggy friends! What a great visit!! <br /><br />And round six!! let's go Ella!<br /><br />Get in <br />Get out<br />Get home!!!!Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-33771734502112730582010-11-29T23:53:53.772-08:002010-11-29T23:53:53.772-08:00I'm so jealous!!! Can't wait to get togeth...I'm so jealous!!! Can't wait to get together in April!!! I'm praying for speedy recovery the sweet and adorable Ella:)Pattihttps://www.blogger.com/profile/17285336545936110323noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-63163016114394164032010-11-29T23:22:14.968-08:002010-11-29T23:22:14.968-08:00Love and prayers to you friend.Left a FB message.
...Love and prayers to you friend.Left a FB message.<br /><br />Still so bummed I missed the get together,A ton of cuteness in one place!The girls and the diapers,just cracked me up!<br /><br />Talk to you tomorrow sometime.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-8196126621905756568.post-28594358266412654012010-11-29T22:27:12.902-08:002010-11-29T22:27:12.902-08:00We had so much fun and we can't wait to see yo...We had so much fun and we can't wait to see you all again <3 *HUGS*Ashleyhttps://www.blogger.com/profile/07456343847176159860noreply@blogger.com