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Sunday, June 6, 2010

What Have We Been Doing At Home???

We have been playing the drums

Playing with the ball blower

Walking the babies


Oh, and a little bit of standing!!


Opening gifts from special friends

Look....it's my friend Chloe



And saying "Elmo", who by the way is now my favorite!!!






What we haven't been doing is going to bed early...or even a little late!! Nope, the earliest time Ella's eyes have closed yet is 11:30pm!!! I don't know what the deal is but this child is not tired at night. I even tried not doing naps the last few days so she would be tired...but no luck. She took a 2 1/2 hour nap in her crib today so we will see if tonight is any better. But the good news is that she doesn't wake up until 9:30am. I am trying really hard not to complain here but boy had I so quickly forgotten what a mess this little angel can make!! I have not been able to get a grip on the house since she came home. She has found everything to get into that she possibly can. I think we had gotten a little slack in some of our childproofing while she was gone and it has caught up to us. SHE HAS BEEN ONE LITTLE STINKER!!! But I will take it any day if it means we are ALL home!!

She is also freaking out if I leave her!! If daddy or my mom come in the room, she panics and finds me as quickly as possible. I can't figure it out other than the fact that they are the two people who would relieve me the most at the hospital and she is afraid that I will leave her if either of them come in the room. Poor daddy, he keeps trying to win her over. He usually will at some point each day but then the next day it's back to her strange reaction. I feel badly for her but at the same time I feel like I can't go anywhere. It is hard because she can't leave the house and go to the store with me so I have to go without her. I know she gets over me leaving but I still feel bad torturing her like that. I think she is just trying to get readjusted to being home. The sad thing is that she will probably just get adjusted and then we will have to go back in to the hospital. Boy am I dreading that day!!!! But I am not thinking about it....hopefully it is still a week away. For now, Ella has been incredibly happy and feeling great. I have to flush her broviac line once a day with heparin so that it won't clot. In the hospital she would wiggle and squirm and whine whenever the nurses did it but I have found that what makes her the most nervous is when I lay her down on her back to do it. I think she associates this with people messing with her. So the last two days I have just let her sit up on the couch and we just sit there and do it and she doesn't mind at all. She even tries to help by pretending to wipe the line down with alcohol.

Tomorrow we go back to the outpatient clinic to have the bone marrow biopsy done. I am hoping that this will be a fairly easy procedure now that she has her line in and we won't have to mess with putting an IV in. Then we just wait a few days for results and PRAY, PRAY, PRAY that she has already gone into remission and they see no leukemia cells!!! (NO, this doesn't mean that we would get to stop treatment).

25 comments:

ANewKindOfPerfect said...

So cute! I love little babes in onesies. :) And how sweet that she is kissing Elmo, and calling him by name! She is moving great too, that's way more mobile than my Peanut is!

treasuresandsnares said...

Very sweet! My oldest Miss G LOVED Elmo, but my Miss T not so much. She loves Backyardigans and Wubbzy.

I wanted to share with you that everytime my Miss T is sitting with me while I am reading blogs, and we get to Miss Ella's blog, my Miss T must give her a high five and hugs and kisses.
Now the significance of this is that Miss T isn't drawn to other little ones. I think because she has sensory issues and really doesn't like it when they cry or squeel with excitment. To have her respond to your little one is a huge step. We are praying for her healing and check up often to see how you are all doing.

Much love, hugs and prayers...oh and high fives on their way to you!

Kim and Miss T

Kele@ said...

PRAY PRAY PRAY indeed!!
I am so happy she is home and having fun! But what about the havoc I told her she needed to reap?!? C'mon Ella! Make your Aunt Kele proud and get into some cute mischief!!
Oh Denise, I can only imagine how hard it is to see her scared or nervous when your mom or her Daddy enters the room, I think you nailed it tho, she just associates it with the hospital.
Today after Pres was extubated and I was holding her, anytime I would just move her a bit to reposition my arm or her, she would just freak out and cling on to me for dear life, she was so scared I was going to put her down and that that would mean more nasty stuff would happen to her.
PLEASE give Ella tons of kisses from me, and now that the horrible tube is out Pres can give Ella kisses too!
So lots of smacks coming your way from Texas sweet Ella!

Kristin said...

Love seeing her playing away. How's her hair? We shaved Max's head in her honor today :)

Heather said...

Praying for all good things tomorrow.Quick in and quick out then back home to make some mischief ... just what I like to see!

Tina said...

Oh it's so wonderful seeing her making all that mess (o.k. I know probably not for you) but like you said, anyday this mess and more compared to being in that hospital bed. She looks like she's trying to make up for all those lost days!! Good for you Ella you have full license to make as much mess as you want and you know nobodies going to say a word.

She does look well, chirpy and full of life. I am loving seeing these pictures of her. Keeping my fingers crossed and praying praying that all goes well with the bone marrow biopsy and that she has gone in remission. Hugs to the little angel :)

maverick said...

Just love to see her happy n cheerful... God bless... Take care !

Runningmama said...

I love the video of her with Elmo, it's just too cute for words! I am praying that there are NO leukemia cells and that she is already in remission. I love that she is getting into everything...it means she's feeling good!

Rochelle said...

Love the video, glad you are enjoying time at home even if she is a stinker at times =)!
Definitely praying for her numbers we would love to hear she is in remission!

my family said...

prayer?of course we are STILL praying for that sweet little one.
The onesie is just adorable.

She is doing awesome...she's getting those walking legs ready so that she will be running out of that hospital next time.

Kelly said...

**SMILE** This is such GREAT news to hear :) So happy that Ella is feeling well and back to being a little stinker!! Sorry mommy!!!! LOVE the Elmo video.....she is just too cute:) Hugs, kisses and hi-5's from Landon to his sweet Ella!! He was so happy to see her in motion!

Continued prayers being sent your way. I hope all goes well at Ella's appointment today! We will be thinking of you all!!

Coco said...

She looks great. You must be so happy that she's home. We will keep praying. Coco loves Elmo too, but who doesn't love Elmo.

Sweet Pea's Mommy said...

Love the Elmo video and the new pictures. Looks like you have your hands full! I will think really positive thoughts for today's test!

ANewKindOfPerfect said...

I must have caught your blog right as you were updating it! :) The photos are great, and look at her standing! Way to go Ella!

I will be thinking of you today as you undergo the bone marrow aspiration. I hope hope HOPE that is shows no leukemia! It would be awesome to see that the chemo is working great already.

Always thinking of you. :)

Lori said...

Oh, Ella! So great to hear that you are being a little stinker at home - that's how we know you are happy =)
Praying that all goes well with the biopsy.

Kelli said...

So glad to see that Ella is tearing things up like every little girl should (although, I'm sure it's more difficult for you!). She looks happy to be home! :)

I'll be thinking about you guys as you wait for the results of the biopsy!

Suzie said...

Lovin the pictures :-)

Bulldogma said...

We love Elmo! The pictures are adorable!! Such a busy little bee - and it's so nice to see her feeling so well!

To Love Endlessly said...

I'm praying those leukemia cells are GONE, GONE, GONE! Ella is just too cute in all these pictures and I love when she says Elmo. It's so perfect and clear. That's sad about Ella Daddy and Grandma. I bet that's hard for them and her too. I'm praying it gets easier.

Emily said...

You bet we will Pray, Pray, Pray! Love that she is able to be herself back at home! Wonderful! The Elmo video was darling!

Devon said...

We are praying too. I LOVE these pics...Ella looks so happy, and that makes me smile. Sweet girl. Remission!! Remission!!!

Mama Mason-Mann said...

Thinking and praying for sweet Ella and her WHOLE family! Glad to see the package arrived. Hope it all came in tack! I LOVE the picture of Ella looking at Chloe. Too sweet. Wish we could get he girls together! Someday. . . Glad to see her home and happy. :)

Googsmom said...

What a cutie!!!

Melissa M said...

I love all the pictures and am keeping Ella in my prayers!

K- floortime lite mama said...

she is a doll
Saying a praeyr all keeps going well for her