Sorry, no pictures today because I am doing this post from the hospital computer but I do have a few good ones to post once I get home.
Ella is doing really well so far. I was worried that once we walked into her room and she saw the crib, that she would be instantly upset and remember why she was here. But I think she almost ooohhed and aaahhed when we walked in. She was perfectly happy with each person that came by to say hi and was full of smiles. They started her chemotherapy last night at 9pm. This round it goes for 3 hours every 12 hours for two days. So basically she will be getting 4 infusions and then we will go home for a few days and then come back next Wed. or Thurs. Because this is a higher dose, they also have had to give her some eye drops every 6 hours and I thought...."this ought to be interesting!" But she actually has done fine with them....other than the brief crying while we hold her down. And so far there hasn't been any nausea, thank goodness. I was really worried about her sleeping last night because they had to do multiple blood draws, check vitals, change diapers etc. etc. and so I thought she would be up all night. But thankfully she slept through EVERYTHING! But of course I heard it all!!!
I tell you one thing though. The good thing about being in the hospital is that we get all of her therapy services so easily. No regional center to fight with. Before 2pm today, she had already been seen by PT, OT and Speech/feeding therapy. Wow!! It is nice because it gives her something to do each day. Yesterday we got a visit from the music therapy guy and boy was that a hit. She LOVED every second of her session with him. I have a great video that I will post when I get home. Another cool thing is that our nursing assistant has a 4 year old son with Ds so I have been getting some good hints from her.
UPDATE::::: During the time I have been typing this, we have had a little spit-up/throw up. She is still smiling so don't know if it is a nauseous throw up or not.
The end of the 2017-2018 School Year
4 weeks ago