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Thursday, June 24, 2010

In The Hospital

Sorry, no pictures today because I am doing this post from the hospital computer but I do have a few good ones to post once I get home.

Ella is doing really well so far. I was worried that once we walked into her room and she saw the crib, that she would be instantly upset and remember why she was here. But I think she almost ooohhed and aaahhed when we walked in. She was perfectly happy with each person that came by to say hi and was full of smiles. They started her chemotherapy last night at 9pm. This round it goes for 3 hours every 12 hours for two days. So basically she will be getting 4 infusions and then we will go home for a few days and then come back next Wed. or Thurs. Because this is a higher dose, they also have had to give her some eye drops every 6 hours and I thought...."this ought to be interesting!" But she actually has done fine with them....other than the brief crying while we hold her down. And so far there hasn't been any nausea, thank goodness. I was really worried about her sleeping last night because they had to do multiple blood draws, check vitals, change diapers etc. etc. and so I thought she would be up all night. But thankfully she slept through EVERYTHING! But of course I heard it all!!!

I tell you one thing though. The good thing about being in the hospital is that we get all of her therapy services so easily. No regional center to fight with. Before 2pm today, she had already been seen by PT, OT and Speech/feeding therapy. Wow!! It is nice because it gives her something to do each day. Yesterday we got a visit from the music therapy guy and boy was that a hit. She LOVED every second of her session with him. I have a great video that I will post when I get home. Another cool thing is that our nursing assistant has a 4 year old son with Ds so I have been getting some good hints from her.

UPDATE::::: During the time I have been typing this, we have had a little spit-up/throw up. She is still smiling so don't know if it is a nauseous throw up or not.

18 comments:

Lori said...

Ahhh, Sweet Ella. Thinking of you and praying that this round goes smoothly.

Rochelle said...

Praying this round goes smoothly with no side effects.
Glad she is doing well so far.
Hugs to you both,

Rachel said...

Your "ears" are almost done and should be in the mail on Monday and help you get through your next hospital stay. Thinking about you sweet girl:)

stephanie said...

Praying Miss E takes this round well!! also praying she by passes the nausea.
This will make you laugh. in all my years and all my kids I've NEVER been puked on! That's pretty impressive! until the other night, by you know who! Miss Em. She woke up coughing and I held her a few minutes and she fell asleep. i gave myself a slap on the back for soothing her so effectively. A little while later the same thing happened. No soothing this time. As I was holding her on my shoulder she threw up all over me. The worst part was it was dark and I thought it was just a little spit up. HAHA, when I went to the bathroom! Almost threw up myself.

Ahhh the joys!!!
Love and hugs!!!

Monica said...

I can't believe she slept through all that poking and prodding! Good for her, sorry for you! And great that she's getting therapies... that probably helps occupy some of her time and distracts from what's going on, too. You're in our prayers!

Anne and Whitney: Up, Down and All Around said...

I am so sorry that you guys are back in the hospital, even though I know it means her counts were good and it is a good thing to take care getting rid of any possible bad stuff that is left... i hope the spit-up/throw up was just a once and done thing and that she will not be nautious, hopefully they are giving her some good anti-nausea meds!
i can't wait to see the music therapy video - glad she is getting such great therapies while she is in the hospital. thinking about you tons and praying every night with the girls for ella grace and her family!!! :)

mandd3 said...

I bet those nurses just love seeing that beautiful smiling face of Ella's! I pray this goes as smoothly as possible and completely as expected. How are you older girls doing in the Big D?

Cindy said...

We're praying for Ella and your entire family.

Runningmama said...

I'll be praying for her...and the rest of the family!

Stevenson Family said...

Oh Sweet Ella Grace...it breaks my heart that you are having to go through all of this again. You are sure a little fighter and inspiration to us all. Stay strong beautiful girl!! We are praying for you.

Tina said...

Trust Ella to be smiling through all this...what an amazing little girl. I will pray that everything goes smoothly for her and she sails through this ordeal. Stay strong sweet Ella, it will all be over before you know it. Love that she's getting all this therapy while in the hospital and it keeps her occupied.

Missed seeing a picture of her today but will forgive you, I mean the fact that you have bothered to get on the computer in the hospital to update us is really great of you. Thanks.

Mama Mason-Mann said...

Here's hoping it was just your typical spit up and not the chemo! Thinking of you and your whole family, as always. Glad Ella gets all her therapy right there! THAT'S GREAT! I guess I hadn't thought about that!

The VW's said...

What a trooper! I bet she brings so much joy to everyone in the hospital! Love, Hugs and Prayers!!!

Cammie Heflin said...

Thinking and praying about miss Ella!

Becca said...

Wow, she is such a trooper. Are the therapists not your regular ones? That's interesting that you get her therapies so easily there! Music therapy sound like fun. :-) I hope the nausea stays away and that her contentment level stays as is!

Kelli said...

Ella is such a trooper. Lindsey HATES eye drops. I swear the girl knows what the bottle looks like and immediately closes her eyes so tight we have to pry them open while she cries. I hope everything continues to go well and you are home soon.

my family said...

we love you sweet Ella. Praying for you too:)

Melissa M said...

I'm glad that she is able to get her therapies while you are there. I'm sure it really breaks up the day for her and for you! That was the worst was Claire was in for 2 weeks with RSV was all the sitting around...