Today we had to go in to the clinic to do another bone marrow biopsy. They require one to be done at the end of round 4 for the study she is on. It is done using "conscious sedation" which means that she isn't put completely out but she is pretty much motionless and doesn't know what is going on and doesn't feel any pain. In the picture above, she is just coming out of her sedation. The Dr. gave her a little more than usual for some reason and it took her quite a while to wake up. Then it takes her about 30 minutes of flopping about before finally gaining some control of her body. It is actually quite hilarious to watch her as she wakes up. First she just started talking but her body wasn't moving at all. Then she keeps trying to sit up and her head is just flopping around. It literally seems like she is drunk. Of course, I never like my daughter having to have any procedure but let me tell you, it is no big deal at all now that we have the central line in. So for that I am thankful. I used to dread this procedure strictly because of how hard it was to get an IV into her arm. We won't get any results for a couple of days but the doctor doesn't feel there is any hint of anything being wrong in her bone marrow. Of course, I will never let myself get quite that confident when it comes to this horrible disease so please continue to keep Ella in your prayers.
All of her blood counts looked great today so they are planning on us going back in to the hospital on Wednesday to start round 5. This will be our shortest stay at home yet but that is okay since we are just anxious to get it over with. The biggest bummer is that she will be getting chemo for 7 days straight which means being hooked up to the IV the whole time.....which sucks with a toddler!!!
Since our weather has finally cooled down (for California anyway), I had to get all of Ella's "winter" wardrobe washed up and ready to wear. I feel like we have so many new things to choose from which of course means fun new pictures to take. However, I am quickly learning that getting pictures of her isn't very easy anymore since she NEVER stops moving!! Below are a couple of photos in her new leopard attire.
The end of the 2017-2018 School Year
4 weeks ago