To catch you all up on our last week's events, Ella has done fine with the G-tube. She was definitely a bit sore to the touch for a few days and I think the feeds bothered her some as her stomach would be stretched causing some pain. But she is doing great with it now and we have worked back up to 7 ounce feedings (the goal is 8 ounces). The biggest problem now is keeping her from pulling the feeding bag attachment out of the tube and spilling her milk all over the place. We tape it like crazy but she has become quite proficient with working the tape over these last few months of having lines all over her body. So if anyone has any suggestions for reducing the amount of mess, I would greatly appreciate it.
We were released from the hospital last Tuesday and were home for a total of 7 hours before Ella decided to get a fever. When you have a central line, a fever can mean there is an infection in your blood and therefore you MUST come in to the hospital to receive IV antibiotics. So, we came back in through the ER about midnight. Her fever at home was 101 and in the ER was 100.5. They gave her Tylenol and we never saw the fever again. Of course nothing turned up in the lines but we can't take any chances. Thankfully, they didn't keep us the full 48 hours and let us out around noon on Thanksgiving day. We only had 3 days at home but we accomplished alot during those days and had some good times. This round will be exactly the same as her last round. Seven days straight of chemo and then sit and wait. Please pray that this round will be much less eventful than the last round. I really hope we can be home for Christmas!!
This was my favorite Black Friday purchase!!
that I have an IV pole in my house. We try to keep
Ella occupied by watching TV and let the bear sit on her feeding tube so
that maybe she won't try to disconnect it!!
Ella's new poncho made by my Aunt Judy.
We had some special visitors on Saturday. Melissa and Claire from Moos Crossing (and her husband) were visiting from Colorado so we planned a little get together at my house. Laura and Ashley (and family) from Dear Laura, Love Sissy also joined us. We had a wonderful time and I can't wait to see them all again. The girls were quite funny together. Once again, Ella was a bit of a brute, finding it humorous to push Claire over from the sitting position. But she also tried to love on her as you can see below. Unfortunately, I didn't get many good pictures as my battery was dying and most of them came out blurry. (If you go to Ashley's blog above, she has much better pics)
Ella and Claire getting a little TOO friendly!!
Ella is showing the girls how to play with diapers
It was actually quite cute as they were all passing them
around like they were playing hot potato!!