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Thursday, November 4, 2010

Good And Bad!!

Let's get the bad over with first. In answer to everyone's question......NO LUCK ON THE EATING!! She simply refuses to let that bottle pass her lips. When daddy got there today, he held her and I tried to "gently" force the bottle in her mouth but all she would do is cry and let it sit there with the milk falling out. So we gave up for now. The doctors agreed with me that it would be a waste of time for us to try to NG tube so they decided to start her on IV nutrition called TPN. Basically this will give her some calories and protein and the hope is that she will start to get her appetite back and then we will be able to stop it. The bummer is that she would have probably gotten to get unhooked from the IV if she was eating but now will be hooked up indefinitely!! Her energy level seemed to have dropped again today and even though we got out for a walk, it was mostly walk a few steps, sit down for a bit, walk a few steps etc. etc. And the rash on the back of her head doesn't really seem any better either. They took a swab of it today to see if it is a fungal or bacterial rash but we won't know anything on that until at least tomorrow. Please pray for her to turn around soon!!



Now on to the good stuff. We got a visit from Reid and his mom Cheri today. And I am happy to report that there were no injuries suffered this time (see this post) Reid was a little shy today so mostly wanted to hang with mommy and Ella was not herself either so it was a very quiet visit. I am sure that Cheri and I should be thankful as normally we probably wouldn't have been able to visit at all because we would have been chasing the kids all over the place. We had no luck getting a picture of the kids by themselves so of course the mommy's had to be in the photo too. Thanks to my old co-worker, Erica, who also came by to visit and was the certified photographer of the day as well as the child entertainer (of all the kids who were out playing on the floor). I have also attached a picture of Reid from Halloween so you can see his "true" personality. Isn't he the cutest!!!








While we were hanging out in the hallway for hours today, it was like social hour for all of the cancer warriors. Here is Ella hanging out with one of our new friends who has quickly become one of our favorites. This is Delilah and she is battling Neuroblastoma. We are madly in love with her and her wonderful family. It has been cute to watch the girls get to know each other. This is one of those pictures that has me realizing the differences in my life right now....Ella and her friend both hooked up to IV's.


12 comments:

Rosa Maria said...

I keep Ella and your family in my prayers. God is always there for us, even the hardest moments. There is an nutritional organic drink called PediaSmart. It is used as a medical food. Here is the link where you can read more about it: http://www.naturesone.com/pediasmart/suggested-use/
The taste is great, which could motivate her to try. Your doctor has probably heard about PediaSmart. Hugs and Kisses from Tommy and I.

Lacey said...

I hate that she is feeling so yucky. I guess we should be grateful that she has handled it so well so far, but it still sucks. Cancer sucks. I wish I lived closer!

Cole said...

Oh I'm so sorry she's having a hard time. She's just so precious! Prayers headed your way!

Zoey's mom said...

Sweet girl ... even a visit from the very handsome Reid didn't perk her up.Amazing and not right, that Reid has been to visit two little loves in the hospital,fighting leukemia.Zoey and now Ella..:(

Will check in later to check on our girl.

The Annessa Family said...

I keep Ella and your family in my prayers - her spirit is just so bright and strong and I enjoy all your beautiful posts and her lovely pictures!

Rochelle said...

Praying for you sweet Ella! Eat girl, eat!
Glad you guys have company to break up the monotony of the hospital.
xoxo

Patti said...

Oh, I will pray she eats soon, and we will keep praying for total recovery. Kisses and hugs from Lily oxox

my family said...

Praying for a hungry girl eat little one. So glad youall had a nice visit, whatawonderful feeling to have friends visit and break up the day

molette said...

I am new to blogging but I have been following Ellas story for a while now. She is such a doll baby and I pray for her daily. My friends mom is going through chemo and her head looks very similar to Ellas, they found out that for some odd reason her hair follicles have become infected. Im wondering if that is what is going on with Ella as well? My thoughts and prayers are with you all. She is such a beautiful little girl!
Jackie

Chris, Becca, Abby and Jocelyn said...

Ohhh Sweet Ella, I hope you start feeling better soon. Denise, please let me know if there is anything I can do here at "home". Would love to have your girls out to our house for a pony cart ride. Praying for Ella!

Hi~I'm Alysha said...

Oh Denise, she's so beautiful! She's been in our prayers & we'll keep them heading upward! Here's to her little belly feeling the hunger pangs & her mouth opening up wide :]

Kristin said...

Oh sweet Ella - praying you feel better soon.