Do you notice a theme here???? Diapers (don't worry, they are clean ones) seem to be Ella's latest comfort "blankie". She literally wants to be holding one all the time and goes to sleep clutching it as if it were a warm, fuzzy blanket. This child is getting stranger by the day.
No real progess on the eating front. She seems to be working better with her feeding therapist but there hasn't really been any great success in eating that would allow her to get off of her IV nutrition. They have weaned her down to about 12 hours a day so at least we can unhook her for a while each day. Her counts hit 0 yesterday and today was at a 14 so realistically we could be looking at going home by the end of this week. Normally I would be so excited at this prospect but because of these darn feeding issues, I find I am kind of hesitant. It sounds like they would more than likely send us home with the IV nutrition and she would be hooked up to for 12 hours a day...which at least we could do at night. But it sure takes away the excitement of the freedom at home. I keep hoping that maybe she will just start eating once we get home but I don't know if that is realistic. Other than that, Ella is doing well so I guess we should be thankful for that. Thanks again to everyone for all the prayers and supportive comments. They mean everything to us!!!