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Wednesday, September 16, 2009

No Results Yet....But What A Day!!!


First of all, I want to thank everyone for your prayers today, with a special shout out to Zoey and Chloe's moms who did a special post for Ella. We still need continued prayers as it will take a few days for the results to come in.

It sure was an eventful day though. We arrived there for our appointment at 10:30am and they did the usual weigh-in, temperature and blood pressure. Then the doctor comes and asks me if she had blood drawn yesterday of which I said, "No, no one asked us to". Then she said that with her platelets being so low last week they didn't want to take a chance on doing a procedure because low platelets mean a possibility of her blood not clotting. So they wanted us to do another blood draw before the procedure which would mean waiting a few hours for results or coming back the next day to do the bone marrow biopsy. Now keep in mind that she has to be fasting and its already after 11am and she hasn't eaten yet AND we live an hour away so coming back the next day wasn't a great option either. SO, they decided to just assume that her platelets were still low and give her a platelet transfusion before the biopsy. BUT first thing they have to do is get the IV in which is already a task with Ella. So they wrapped her up like a burrito (like we do with newborns) leaving only one arm out. After 30 minutes of constant SCREAMING and two attempts at inserting the IV, we have success. So they start the platelet transfusion through the IV and tell me that there is always a risk of an allergic reaction so we watch her for any signs of hives or labored breathing. She is fine so as soon as the transfusion is done, they sedate her for the procedure and I leave the room. A few minutes later I notice first one nurse and then another enter the room......hmmm that's odd. But then 30 seconds later, one of the nurses pops their head out and says "Don't worry, she is fine". A few minutes later they call me back in and say they are done. When I walk in, the NP is holding her and said that she ended up having a reaction to the platelets. I guess as they were doing the biopsy, the nurse happen to lift up her shirt and saw a few hives and then she coughed a little bit. So the doctor immediately called for some IV Benedryl. Well you know how sleepy you can get off just regular Benedryl and I guess the IV kind is even worse. Plus she had just been under conscious sedation. So basically, they hooked her up with some sugar water so she wouldn't get dehydrated or low blood sugar since she hadn't eaten yet and I sat and held her for the next 3 hours while she slept. See they wouldn't let me leave until she was awake, had a bottle and didn't have any hives. So FINALLY at 4pm, we were able to leave. She seemed kind of dazed on the drive home but I am happy to report that as I write this, she is busily crawling around the house making messes as usual.

So now we wait.......and again, your prayers will be appreciated.

18 comments:

ABandCsMom said...

Wow. What a day indeed. Sounds like she's a trooper though. Up and attem as soon as you get home. These kids of ours are amazing.

Benedryl via IV doesn't make Carly sleepy at all. Get this, it makes her itch! None of the medical team can figure that one out. Every time they gave her Benedryl via IV, the poor kid about went bonkers. Rubbing and itching her eyes and nose. The oral kind doesn't do that to her at all. She doesn't get sleepy from that either. Silly kid!

Hope you have some news soon. I know all to well how the waiting just eats at you. We'll be thinking of you all and anxiously waiting the results. Praying all is well. So sweet little Ella Grace can avoid icky chemo.

Lacey said...

Ugh wait, that makes me crazy. I can't imagine how you feel. Heather said Zoeys usually come back before they leave. But I had forgotten that your at different hospitals. Praying that everything is good, or is the way you want it to be. I know your getting tired of the chasing game.

Emily said...

Oh my goodness... What a day for sure! Anxious for the news... good news is what we're praying for! Quite the little trooper she is! And Mom too!

My name is Sarah said...

We are thinking of you all.

Heidi said...

I was praying for you this morning and thinking about you all day. What a day you had! I will definitely keep praying for you over the next few days as you await the results.

Reagan Leigh said...

Thinking of you and precious little Ella today!

Kristin said...

Oh man, that's rough. Poor little sweetie. Give her a hug for us. Praying for good results :)

Heather said...

GO TO BED EARLY!!!I know you won't but I thought I'd say it anyway!Glad I didn't have to stalk you today and that you called and texted me ..made me rest easier.For now just take a deep breath and know we are all praying for you and are here for you.

When shall we cram in getting together ..half way??

Adam, Jaci, Grant and Grace said...

What a day is right! I am glad to hear that she is busily moving around the house now. Let us know as soon as you hear anything!

Kele said...

Praying, praying, praying... will be looking frequently for your post about the results!
Kiss the Princess, does sound like she had quiet the day!

Tina said...

Prayers coming your way non stop, please keep us posted with the results I shall be anxiously checking. Ella sweetheart please don't spring any surprises on us we are all praying for you and with so much positive energy coming your way I am sure things can only look up.
You guys really had some day glad she was back to her perky self by the evening. Denise my thoughts and prayers continue to come your way from the other end of the globe.

Mama Mason-Mann said...

Whoa, what an adventure. I'm so glad it's over and you're home and she can go back to making her usual messes while you wait. I guess on a positive note, SHE'S not aware of "waiting" for results so she can just go on being Sweet Ella Grace! :) HUGS

stephanie said...

I am having blog issues. I am just getting your update. That sweet pea, what a day. And Mom too. Hold tight. Sending prayers and a big big hug.Please keep us posted.

Anonymous said...

We are praying for her! Cami

Michelle said...

I have been waiting and waiting...and looks like we all still have to wait! Poor Ella! What along day! Dont' you love the IV placement...makes me crazy! I make IV team do all of preslie's IV's and blood draws. They are the only one's I trust with her. Glad you make it back home and Ella is 'Ok' after that whole ordeal. Now just praying for GOOD results once again! Love you guys!!! xoxo

heidi marie said...

i'm trying to do some catch up on blogs today and have been backtracking on yours :) just wanted to say that ella and your family are all in my prayers and on my mind. i love all the recent pics! especially the adorable new bow pics.

ella is such a doll and so amazing! lots and lots of prayers...

Cathy said...

Just wanted to let you know that even though I haven't been posting comments lately, I am praying!!

God bless you and your family!

Anderson Family said...

Wow what a day! We pray that good results will come quickly. I hate those IV's too. Carter came out of surgery with quite a bruise on his foot - but he ended up with an IV in his hand which means they must not have been successful in the foot area. We just love Ella and her smiles and are praying for your sweet angel!