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Wednesday, September 23, 2009

Results.........FINALLY!!!

After just posting below, the doctor finally called me. Of course it is always a little worrisome when the actual doctor calls but then I am always happy to be able to question him directly. Anyway.....for now, Ella's bone marrow remains the same. For those of you that understand the lingo....her bone marrow shows 2% blasts in it. I guess anything under 5% is fine. Everyone has some blasts at any given time. And apparently she has had 2% blasts in previous bone marrow biopsies as well. So the good news is that nothing has gotten worse!! The doctor is still waiting on the chromosome results which I guess will show if there are anymore of the bad chromosomes developing. This is how I understand this....I could be way wrong...but, everything starts with the chromosomes. In Ella's first bone marrow biopsy, they saw some bad cells on chromosome 8 which is an indicator for cancer (I think). In her second biopsy, those bad chromosome 8 cells remained unchanged. So he wants to see if those have changed this time. Leukemia will start with a change in the chromosome cells which will in turn start affecting her bone marrow which in turn affects her blood. So he feels that something is going on that is making her platelets so low but its not showing itself yet. He still thinks that we will most likely have to do chemo sometime in the future...we just don't know when that will be. I just keep hoping that it is Ella's wacky blood. Kids with Down syndrome just do things differently. Time will tell but for now we can breath easier for another month. We will recheck again in a month.

Thanks EVERYONE for praying for Ella and for sending me messages and for just thinking of us all so much while we are on our roller coaster ride!!! It would be a lot harder without people who care.

18 comments:

Kristin said...

Whew! Oh that brings a smile. Now go schedule a playdate with your new local buddies!!

Emily said...

Love the good news!! Keep it up cute Ella! We miss you!

Anderson Family said...

That sounds like good news for Ella! I don't really understand all that lingo - doctors speak a foreign tongue. We will pray that you will also get good news next month - what a roller coaster!

ABandCsMom said...

Great news!

Lori said...

Praise the Lord! Now we will just keep praying that her numbers don't change (except that those platelets go up!!)

My name is Sarah said...

So happy for the good news.

heidi marie said...

GREAT NEWS!!! STILL PRAYING THAT THE OTHER RESULTS COME BACK GOOD

Heidi said...

I'm so glad to hear that great news! I will keep praying for the other results.

Tina said...

I breath a sigh of relief.....so so happy for you for your family and mostly for little Ella, but shall keep praying that things keep looking up at her next check-up. Saira just got her blood work back, her platelets are very high, now not very sure what that means....this is all very confusing to me, still need to talk to her doc about that.
Can't believe I missed your last post, gosh Ellas looks like she was a busy girl on her own, hope you managed to get everything back in order!! Got a mind of her own it seems, how adorable.

Devon said...

Well thank heaven. Did they take long enough?! Agh!

Heather said...

Enjoyed our talks today and loved hearing the good news especially!We love you Miss Ella keep being busy and naughty and mischievous ... it's just the way we like it!

The Lehnick Family said...

So happy to hear the news...Just keeping those doctors on their toes, which is a good thing...We sure miss you guys too!

Mama Mason-Mann said...

THAT is supercalafragulisticsexpialidosious news!! (I'm sure I spelled that wrong - haa haa). I'm soooooo tickled to hear this news. Congratulations.

stephanie said...

Very good!!! Kiss Ella. Continued prayers.

Tim and Kelli said...

Glad to hear. Now if those platelets would just go up and stay up!

Kristen's mom said...

Yeah for sweet Ella!

mauimom said...

So glad to hear, and we will continue to pray! Sylas sends a big wet kiss!

Kele said...

The power of prayer is an awesome thing! Give yourself a hug from me and a big sloppy kiss to Ella. Praise God Denise!