After just posting below, the doctor finally called me. Of course it is always a little worrisome when the actual doctor calls but then I am always happy to be able to question him directly. Anyway.....for now, Ella's bone marrow remains the same. For those of you that understand the lingo....her bone marrow shows 2% blasts in it. I guess anything under 5% is fine. Everyone has some blasts at any given time. And apparently she has had 2% blasts in previous bone marrow biopsies as well. So the good news is that nothing has gotten worse!! The doctor is still waiting on the chromosome results which I guess will show if there are anymore of the bad chromosomes developing. This is how I understand this....I could be way wrong...but, everything starts with the chromosomes. In Ella's first bone marrow biopsy, they saw some bad cells on chromosome 8 which is an indicator for cancer (I think). In her second biopsy, those bad chromosome 8 cells remained unchanged. So he wants to see if those have changed this time. Leukemia will start with a change in the chromosome cells which will in turn start affecting her bone marrow which in turn affects her blood. So he feels that something is going on that is making her platelets so low but its not showing itself yet. He still thinks that we will most likely have to do chemo sometime in the future...we just don't know when that will be. I just keep hoping that it is Ella's wacky blood. Kids with Down syndrome just do things differently. Time will tell but for now we can breath easier for another month. We will recheck again in a month.
Thanks EVERYONE for praying for Ella and for sending me messages and for just thinking of us all so much while we are on our roller coaster ride!!! It would be a lot harder without people who care.
1 week ago