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Sunday, March 21, 2010

Happy World Down Syndrome Day!!!



I have a child with Down syndome!!! There was a day about 2 ½ years ago that this comment made me sick to my stomach. We had just found out that the baby I was carrying definitely had Down syndrome. All of us who have a child with Ds remember those “dark days” very well. Whether it be before the child was born or after. But now, that comment, “I have a child with Down syndrome” is said with pride. And I know that each of us all would agree on that as well. There is something so special about these children of ours that now we truly wish that everyone could be able to experience having a child with Ds. We don’t feel like we were punished by God….we feel we were blessed!!! I know that people who don’t walk in our shoes probably think we just say that to make ourselves feel better……but we know better. Sometimes it does feel like an exclusive club “That we never knew we wanted to be a part of, until we were”. Yes, there are and will always be some challenges along the way….but our little ones are more than worth it. A quote I heard a few months ago that I feels applies to so many aspects in life, but especially this part is “Life isn’t the way it is suppose to be. It’s the way it is. It’s how you cope with it that makes all the difference”.


WE LOVE YOU ELLA GRACE!!!















20 comments:

Adam, Jaci, Grant and Grace said...

We love Ella, too! Hope all is well with you guys! Oh, and you asked if Grace had given blood...she was admitted to the hospital a few weeks ago for a UTI, dehydration and hypoglycemia. Her IV blew and then they proceeded to stick her 8 more times...you know how that goes. have a great night!

Lori said...

We love you too Sweet Ella!

Rachel said...

Ella is precious! While I do not have a child with Down Syndrome (yet), the extra chromosome blessing runs on both sides of my family. I have a couple of adult cousins--both remarkable ladies--who have DS, not to mention the son of some dear family friends--he is such a blessing! I hope to parent a few children with DS in the future-- I would love to adopt through Reece's Rainbow eventually! In the meantime I enjoy volunteering at Down Syndrome events in my community. Happy World Down Syndrome Day!

Heather said...

Miss Ella ... we love you so!And we love this club we are are .It is exclusive and I would not trade my membership for anything!

Hope we can have a playdate soon!

Kacey Bode said...

We love Ella Grace too, yours and mine : )

Happy World Down Syndrome Day!!!

stephanie said...

OH boy do we love you Ella!!! Beautiful post Denise! Love the quote.

My name is Sarah said...

Darling!!!

Lacey said...

We love our little Ella. Tanner still talks about her. Saturday we had dinner with Michelle and Preslie. Tanner told me he likes Ella better because she talks, and she plays forks with him!

Emily said...

That was so beautifully said! Love you Miss Ella!

Devon said...

Ella must get her enthusiasm from you, Denise. Beautiful post, beautiful girl!!

kecia said...

she is so cute! Loved the post!! I totally agree!

The Sanchez Family said...

She is PRECIOUS!!!!

Mama Mason-Mann said...

Love that sweet Ella Grace! Happy World Down Syndrome Day! :)

Kelly said...

We love you too Miss Ella:) Happy World Down Syndrome Day!!

Kelli said...

ella has such a beautiful smile! Great post (I completely agree with you!)!

Heidi said...

Beautifully said! Love the pictures of Ella - she is SO cute!

Anne and Whitney: Up, Down and All Around said...

well said, thank you for such a beautiful post :)

Tina said...

A very happy World Down Syndrome Day to all of you. Love you sweet little Ella and although we are separated by oceans this day all of you my dear blogging friends were constantly on my mind. Hope you had a great day :)

Anderson Family said...

Very well said - and we love Ella too! And we are so glad to have met so many friends through the blogging world and special club that we belong to!

Sweet Pea's Mommy said...

Love it! Thank you for that great quote too! I am including it in my post tonight because it is so fitting. My little Sweet Pea shares Ella's b-day, just a year later! Ella is just adorable!!!!