I am so sorry that it has taken me so long to post an update on Ella. The computers at the hospital are so blocked and even though they gave me codes to get on facebook and my blog, when I would try to post something, it would block me out again. It was just too much work to get any messages out. Just know that I tried. ANYWAY...Ella is doing much better. She is still in the hospital at this point. The morning of the day we took her in to ER her Hb was 3.5 and by that night when they drew blood again, it was down to a 3.0. Thankfully they were expecting us at the ER and we got taken right back to a room. But we had to sit in that room for a couple of hours while they got her IV in, took some blood to make sure of her blood type, wait for the blood to come down etc. etc. By the time we got to a room it was 3am. Ella finally got to sleep in a crib for about 3 1/2 hours until of course they come in to start messing with her. It is true when they say you get no sleep in the hospital!!! Over the last 2 days, they have given her 5 units of blood which brought her numbers up to 8.6 as of this morning. What a difference we saw in our little girl once she got some iron back. She was so perky yesterday that I couldn't get her to nap even though she had only slept a few hours the night before. She would just smile and make faces at every person who walked in the door......of course until they tried to touch her. Then the screaming would start. Then the smiles and faces would come back again after they finished. They have run every blood test to check for viruses but of course those take a few days to get back. Today was nice because they actually disconnected her IV and monitor for a while and let her play on the play mat and take and little cruise around the hospital. She wouldn't keep her mask on and kept trying to climb out of the wagon so I didn't keep her out long. I just went down to the cafeteria and got a salad and soda and came back. Still it was sooo nice to get out of that room. She of course has perfected the parade wave by waving at every person that gave her attention on our adventure. Right after I left her with daddy, the nurse checked her IV and apparently it wasn't working right so they had to take it out and re-do it. Thank God it went smoothly and I guess they put it in her foot this time.
The doctors still haven't figured out what the cause is. Each doctor seems have their own suspicions but haven't been able to confirm it. The possibility still exists that it could be leukemia cells starting to take over in her bone marrow but that can only be confirmed with a bone marrow biopsy which can't be done until her hemoglobin numbers are at least 9.0 and now with the holiday and weekend, the results wouldn't get back right away anyway. One doctor still thinks it is some condition that I can't remember the name of called something like hemapenia but he can't confirm that either. SOOOOO as of tonight when I finally left daddy to stay the night and I came home for a nice turkey dinner and a good night's sleep in my own bed, they are giving her 2 more units of blood tonight and then will do another blood draw in the morning and as long as her numbers are still up, she will get to come home sometime tomorrow and then we will go back to the outpatient clinic next week to do the bone marrow biopsy. Thank you everyone for your thoughts and prayers...they are SOOO appreciated. Here are a few pictures of Ella's metamorphasis over the last few days.
Waiting for mommy to get stuff together to head to the hospital
In the ER
Falling asleep on daddy's shoulder in the ER
Ella's ET toe....she was fascinated with it
The next morning after 2 units of blood
Starting to really get some energy back
Gotta have your Jaxson blankie when you are in the hospital
Just after a sponge bath
Going for a ride