We love this little girl so much!! I can't believe that another month has already passed by. Ella still seems to be feeling good. I think both daddy and I are on high alert worrying about every little thing she does. "Is she still pink?", "How has her energy been today?", "Is she moving around and getting into everything?" For now, the answers to all of these questions are "yes!" We had some pictures done of my kids and their cousin two days before she went into the hospital and I just picked them up last night. I was SHOCKED at how pale she was in the photos. I can't even tell you how guilty it makes me feel that it took me so long to figure out what was going on. I will try to scan one of the photos so you can see just how bad she looked....however, she was totally smiling in all of the pictures. What a trooper!!!
Tomorrow morning I will take her to our local lab and get her blood drawn again for the tenth time this week. Then on Tuesday, we will head to CHOC to get her bone marrow biopsy done. They want her blood counts done the day before so they have them the day of the procedure to make sure her hemoglobin and platelet counts are high enough to do the procedure. I pray they will be so that we can get some answers. We are definitely in "prepare for the worst and hope for the best" mode. Joe and I have started talking over the details of how we will work things out IF she is showing signs of leukemia and we have to start having long hospital stays. The hardest part to figure out is what to do with Abbey and Emma. Thankfully my mom and sister are in town so that should help. I know it seems as if we are being premature in our planning but we just don't want to get hit with everything at once. And the truth is that most of the doctors do feel that she will probably turn to leukemia eventually.
On a positive note, I think she is saying her first official word...."bye, bye". She has been saying something like Ma Ma and Da Da but it doesn't seem to necessarily be directed towards us all the time. But bye bye is always accompanied with a wave of the hand so on this one I am sure. Maybe someday I will be able to catch it on video.