****fyi....to those that are checking my blog and may try to call or text friday morning, my cell phone is dead and the charger is sitting on my counter at home...oops!! So please don't get stressed if you don't get a hold of me!!*****
Tonight has definitely been better. I got to the hospital around 4pm and Ella was sleeping on daddy's shoulder. She still had the chest tube in but somehow was still ok sleeping that way. The cardiologist had attempted to take the chest tube out earlier but had met with some resistance and didn't want to take a chance on pulling it out and having there be a problem. So he wanted the thoracic-cardiac surgeon to come check it out. He finally showed up around 5:30pm and proceeded to pull it right out with her sitting on my lap. He said that sometimes if they are knocked out when they insert the tube, they are very relaxed and by the time he went to pull it out, she had tensed up her muscle and more than likely this was the resistance they felt. So thankfully that tube is out now!!! They took her off the bi-pap maching (big mask) early his afternoon and now she is just left with the nasal cannula and a feeding tube down her nose. Earlier, she was still trying to pull at the things in her nose and I was literally having to hold her arms down..which she hated, but then she suddenly relaxed in her bed and proceeded to fall asleep for 4 hours. When she woke up, she seemed very relaxed and has just been lying there trying to decide if she wants to go back to sleep or not.
For bigger news....the first round of chemo is officially complete. All 96 hours of it has run through her veins. Now we just sit here and wait for it to kill off all of the blood cells and watch her immunitydisappear along with it. Eventually she should start remaking her good blood cells and when she gets them high enough....we will get to go home for a short bit (hopefully). So for the next 3 weeks or so, we will be hanging here at CHOC so please, if you live in the vicinity, feel free to keep me company....ONLY HEALTHY PEOPLE MAY APPLY!!!!
Tomorrow we should move back down to the oncology floor. They will do one more echo of her heart just to make sure that the fluid is still gone and then I am praying that she can do away with the oxygen and start to be our sweet little Ella again!
No pictures tonight as I am at the hospital but I am hoping to get some of her sitting up tomorrow.
Eliminating Down Syndrome - a Scary Thought
6 days ago