We are back in the hospital and have started round 4 of chemo. But I have to admit that my positive attitude has been wavering a bit lately. A few days ago, another sweet girl with Ds, Lois relapsed. She had just completed the same treatment that Ella is undergoing a few weeks ago and was moving on with her life. Then suddenly and unexpectedly, she relapsed. She cruised right through her treatment just as Ella is doing with very few complications. She was considered 100% cancer free just 3 weeks ago. Now her family is dealing with how to get her back into remission and trying to find a bone marrow donor so they can do a bone marrow transplant. Of course the logical side of my brain tells me that this doesn't mean that the same thing will happen to Ella but this has definitely given me a reality check. Yes, our kids with Ds do generally fare better than their typical counterparts when it comes to winning the battle against leukemia, but there are no guarantees in this ugly world of cancer. So please, continue to pray for Ella to stay in remission as well as for successful treatment for darling Lois. And just as important, please register to be a bone marrow donor. It is very simple just go to this website and sign up. You never know who you may be able to help.
Please pray for this precious little girl!!!!
15 comments:
Denise I can only try and imagine your satate of mind, the worries and the fear, but don#t let your confidence and positive attitute be taken away from you, it's hard I know but stay positive, it'S powers are unimaginable.
I will be praying for our sweet darling Ella constantly like I will be for Lois as well. The news about her relapse was devasting, my heart aches and I feel so much anger, why must so many precious children have to suffer this way. It's so hard to understand. But you try not to worry too much, I know it's very very hard, but we are all praying so hard for Ella and all will be fine my friend. Sending much love to you and to sweet Ella.
I know your heart is heavy,I hear it in your voice each time we speak.you know that I understand completely,I have been there myself a time or two before.All I can say is that we love you and we love Ella and we will continue to pray her through the rounds ahead and beyond.
And we will continue to pray for sweet Lois,with all our might and pray her miracle comes.
Denise- I'm praying for sweet Ella and darling little Lois as I type..i can't imagine the stress and worry you are probably going thru right now! You don't deserve this, and neither does Ella. God will bring you through! I will put you guys and Lois' family on our prayer list at church! Keep your head held high, love you! XOXO.
I'll be thinking of and praying for both of your families! Big Hugs!!!
Hi Denise,
I'm sorry your confidence has been shaken. I can only imagine how hard this must be on you and your family. I'm sending positive thoughts and prayers for your family and sweet Lois' family. Know that there are many of us standing behind/beside you! Lots of love.
Denise, we are, as always, praying for Ella and Lois as well. I'm sure your heart is heavy but you have so many standing with you and loving you all and espcially Ella.
Even though Emily has not been technically diagnosed, I have always held onto the statistics of how well our children fare against leukemia...and when I read about Lois it broke me heart and I was shaken by it. I am continuing to pray for Ella and Lois.
Bleh...my heart is hurting for you, hon. I can't begin to imagine what you and your family are going through. I'm sorry that you (any parent, for that matter) have to go through this...and especially that Ella has to go through it. Continues prayers for Ella and now too, for Lois. (((HUGS)))
We are praying for Ella & Lois daily. Praying for your peace also. I know it is so hard but, try not to worry with the what ifs give it to God.
As a cancer survivor I can totally understand where you are right now. But, I am grateful for everyday I am here and cancer free and we will celebrate that day soon for Ella and pray that that nasty cancer stays gone forever!
hugs & ♥ to you all!
xoxo
Hi Denise -
Many prayers for Ella as you head back into the trenches. (Love the cowboy pic, btw). Sweet Ella is a fighter, and whatever path God has you on -- know that He is in control.
Thank you for sharing the news about Lois...we will definitely be adding her to our prayer list.
Denise,
What is happening to Lois is EXTREMELY rare. Her Doctor cannot find a single case of a DS patient with the MDS diagnosis relapsing after completing treatment. Keep the faith....it is unlikely that your darling Ella be in Lois' position.
Jay
Lois' Dad
unbelievably devastating. i just posted about donating to the bone marrow registry. always thinking about you guys and little ella!!! now adding lois to my prayers, too!!!
I can't even begin to imagine all that you and your husband feel and are going through right now. Having a child with special needs you open yourself up to so many wonderful people. But you also open yourself up to a world of people who face so many hardships you would have never known about.
We will definitely be praying for lil miss Lois as we continually pray for Ella. Big, BIG hugs.
I thought of Ella when I read about Lois. I really hoped that you wouldn't hear about her somehow. I knew it wasn't even a remote possibility, but I had to hope that you could be spared that news. I will continue to pray for Ella and Lois!!! I'm hoping this current round goes just as smooth as the last one!
my heart breaks as I cant imagine this news about your sweet loves. The waiting must be gut wrenching and you all are on my mind more than you can imainge. You all are in our prayers daily.
I saw Lois' dad's comment and it it is somewhat reassuring that this is so rare but sucks it has to happen as all.
We will add little Lois to our prayers too.
{{hugs}}
gotta love that darling cowgirl:0)
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